Kate and Mandy chat with Dalal, founder of SATB2 Connect, an advocacy organisation for people and families affected by SATB2 Associated Syndrome.
SATB2 Connect was inspired by Dalal’s experiences with her daughter Naomi, who has the rare genetic condition. Started in 2021 (during COVID, a few days before Christmas!) SATB2 Connect was created to support those living with SATB2 Associated Syndrome and its symptoms. SATB2 Connect aims to raise awareness, advocate, raise funds and drive research to educate, support and collaborate with researchers, medical professionals, therapists and families.
Dalal talks about the diagnosis journey, finding her ‘advocacy gene’ and reaching out to specialists and researchers at the University of Sydney to partner with them on much-needed SATB2 research, and student project opportunities in OT, speech and biomedical engineering.
Dalal also shares her dreams for the future in supporting people and families with SATB2, including specialist clinics and support and respite options. Thank you Dalal for sharing your story with us.
Connect with SATB2 Connect via their website, Facebook and LinkedIn,
Plus:
- Listen to our Spotify playlist –Too Peas: Songs Our Guest Peas Love
- Join our Facebook Hangout
- Find us on YouTube
- Buy our book The Invisible Life Of Us!
- Leave us a speakpipe
- Help spread the love for Too Peas by rating and reviewing us!
- Melbourne forecast for Thursday July 20 – Showers developing, windy, 13 degrees
Thank you for supporting Too Peas In A Podcast! We love to hear from you, please contact us here:
Website: www.toopeasinapodcast.com.au
Email: toopeaspodcast@gmail.com
Hosted on Acast. See acast.com/privacy for more information.